Euthanasia and physician-assisted suicide in people with intellectual disabilities and/or autism spectrum disorders: an investigation of 39 Dutch case reports (2012-2021)

Tuffrey-Wijne, Irene (2023) Euthanasia and physician-assisted suicide in people with intellectual disabilities and/or autism spectrum disorders: an investigation of 39 Dutch case reports (2012-2021). [Data Collection]

Lay Summary

This file contains the case numbers of cases included in our study (Full cases, in Dutch, to be found on https://www.euthanasiecommissie.nl/). This document contains extracts from each case (translated into English), with the authors’ categorisation

Item Type:

Data Collection

Creators:

Tuffrey-Wijne, Irene

Contributors:

Curfs, Leopold, Hollins, Sheila and Finlay, Ilora

Faculty, School or Research Centre:

Faculty of Health, Social Care and Education > Centre for Health and Social Care Research

Date Deposited:

09 May 2023 08:43

Type of Data:

Dataset

Data collection method:

The RTE online database (https://www.euthanasiecommissie.nl/) was searched for cases involving people with intellectual disability and/or autism

Publisher:

Kingston University

Statement on legal, ethical and access issues:

Both the Kingston University Research Ethics Committee (London, UK) and the Legal Council of University Hospital Maastricht (Netherlands) confirmed that our study was exempt from ethical review, so no informed consent was required. We used anonymized data that are publicly available on the RTE website. The content of the RTE website is subject to a Creative Commons Zero (CC0) declaration, which means that re-use is permitted (https://www.euthanasiecommissie.nl/copyright).9 The RTE states that they select anonymized cases for publication, based on their relevance to the development of standards and their importance in terms of public and societal interest.9 We discussed our study with a lawyer who is responsible for ethical issues involved in the use of the RTE database. They highlighted that a committee appointed by the Dutch government, which oversees ethical issues around use of the database, has recommended that the published data may be used on commented on freely and without need for further ethical approvals, as long as they are not combined with any other data sets (such as death records) that might compromise anonymity. Our study protocol involved scrutiny of the publicly available data only, and therefore, the lawyer confirmed that as these have already been subject to Dutch government considerations, further ethical approvals were not required.

Irene Tuffrey-Wijne

Geographic coverage:

Netherlands

Collection period:

From	To
2012	2021

Retention date:

5 May 2033

URI:

https://researchdata.kingston.ac.uk/id/eprint/168

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